Taylor's Quote of the Day: “Cancer is a word, not a sentence.” – John Diamon

This picture of Taylor was taken in her backyard from 2012.

This picture has been placed at the top because it is probably the most beautiful picture in the world.
A very fun day in March 2011 with Abby, Taylor and Taylor! — with Abby Kay MillerAimee Mask Love and Taylor Klein.

Taylor's Quote of the Day: “The human spirit is stronger than anything that can happen to it.” – C.C. Scott

We took this photo of Taylor in 2010 prior to her bone marrow transplant. This life saving procedure was necessary because the treatment for her original cancer gave her a secondary cancer.
Taylor's Life Lesson #39: Forgive those who hurt you otherwise your wounds will never heal. Back when Taylor was 3, she was viciously clawed by a little girl who didn't want to share her toys. I remember that Aimee was still pretty upset about it the next day when I stopped by. (see photo below) My guess is that Taylor forgave the girl right away because she is such a loving child of God. I could be wrong though. Taylor may have beaten the little girl's diapered butt the next time she saw her :) It just sounds much better to say that she instantly forgave her!!! -MG

Nov 4th, 2010
About 5 a.m. this morning I took my wife and 8-year-old daughter Elizabeth to the airport so they could visit my mother-in-law who was recently diagnosed with breast cancer. On the way Elizabeth asked me why God gives people cancer. I told her I didn't know but that I would see if I could find out. So can you help me out? I have 5 days to figure this out before she gets back. -Mike G. (attached is a photo of Taylor and Elizabeth from when Taylor was first admitted to Children's Hospital this summer.)

January 15th, 2011
Helping Hands. This photo is from Taylor's birthday party yesterday. It has special meaning because it involves one child helping another. Although Taylor is completely unaware of this, she actually helped a child the very same night. When I posted the information about the 2-year-old homeless boy on Taylor's behalf, her supporters (you) came forward with generous offers of support. So much support that Barbara (the mom) and her son would be able to stay at the Red Roof Inn for many weeks or months without having to beg on the streets.

Of course, our goal is to find her a long-term solution for them and many of you have presented several promising options. The next step will be to find out what Barbara wants and then develop a plan. I'm not sure if even she knows but I am going to find out. This is her life and she is the one who will be making all of the decisions without any pressure from anyone. The staff at Red Roof Inn is thrilled that we have taken an interest in helping this family. They care very much for them but they worry about their safety when they are out panhandling late at night in DC. 

Taylor has a very stable home life and it is fitting that on her miraculous 6th birthday, she is able to help a little boy and his mom take steps toward finding a home of their own. I will be in touch everyone who contacted me within a day or so. Thank you!!!! -MG (Also, if you missed the original posting from last night you should read it so that all of this will make sense.)
 — with Katy Liz Weston.

June 27th 2011
Happy 6th birthday Taylor

June 26th, 2011
Taylor Update by Aimee: Results are good!

Mike and I were able to breathe a huge sigh of relief late Friday after hearing from Dr. Perez and Dr. Neri that all of Taylor’s latest scans and biopsies are CLEAR! Different results trickled in this past week, some calls easier to handle than others. When we are waiting for results, the stress and anxiety is enormous, sometimes even greater than we realize. We find ourselves judging everything from which doctor is calling, what time they are calling, voice tone, etc. Answering hospital calls can at times take our breath away and often times cause panic to set in instantly. We need and want the information but also find ourselves fearing getting the results. It’s easy to get worked up waiting for news that will determine the next few months of Taylor and our family’s life.

Our sigh of relief on Friday after all results were in was filled with joy. We celebrate quietly, cautiously and look forward to 3 more months of relative normalcy and freedom. Next up for Taylor will be a Nephrology visit to check Taylor’s kidneys and another phlebotomy (blood draw to filter out iron stores) in September, a Oncology visit in October and scans again in November.

Taylor will begin first grade on Monday!!! She is very excited and lets us and her brothers know that. Adam on the other hand (going into 4th grade) will question her enthusiasm like any other kid whose summer is about to end with something like the following; “Taylor…why are you so excited for the first day of school!?” Another HUGE milestone for Taylor…we are blessed, fortunate, lucky and so very grateful.

Thank you for all you continued prayers and support. It means the world to us to have so many caring people in our community of support.

Blessings
-Aimee and Michael

August 2011
Taylor Update by Aimee...Day +365 Post BMT…1 year post transplant! 

Today is an incredible milestone for Taylor…one year ago today we sat in her dimly lit hospital room for her bone marrow transplant. Taylor slept peacefully while there was a little hustle bustle in and out of the room of doctors and nurses and the arrival of what would become her new immune system. This incredible gift of life from our saint of a donor was transfused into her body while she slept. From there we watched her slowly but surely grow strong again…handling some major roadblocks along the way. The fact that today Taylor is alive, growing and thriving is simply a miracle.

As we celebrate today, we do so, as usual with guarded caution knowing that Taylor’s barrage of 3 month scans and tests to check the status of her disease await us over the next 2 weeks (starting Monday). We love that we have gotten to this huge milestone post-transplant…but we also remain fully aware of what always lingers out there threatening to bring harm to our little girl.

We have done what we wanted this summer…we have created some excellent family experiences…we were able to swim…travel…see new things…see old friends…celebrate 4 birthdays…and just live, laugh, and love together as a family. We hope and pray that the results of Taylor’s scans and tests tell us she remains disease free so we can continue down this path of creating new experiences…and living life together.

Celebrate with us today this huge milestone! Offer thanks and praise to the bone marrow donor that so selflessly gave a part of his own body to save our daughter. And please pray with us that the next 2 weeks of tests tell us that Taylor will be able to enter 1st grade in a few weeks cancer free and as strong as ever.

-Michael & Aimee
www.bethematch.org

August 2011
Today is the one year anniversary of Taylor's Bone Marrow Transplant. A huge milestone! I am reposting part of the Carepage that Aimee wrote that day. Taylor is doing so well right now but at the time everyone was full of hope and fear. The cool thing is that all of the prayers Aimee asked for that day were answered! Here is her posting from one year ago...

Today, 8/13/2010 at 3:20 PM Taylor’s new Marrow arrived at her room and the transfusion of marrow began. Prior to transfusion Taylor threw up for the first time in 2 days, she then proceeded to sleep through the first 1 ½ hours of the bone marrow transfusion – she was heavily medicated on Benadryl and other support pre-meds. It was very surreal to sit here watching Taylor sleeping quietly and hooked up to an IV tube filled with a bright red “miracle” marrow which slowly infused into her body. The transfusion went in over 2 hours and ended around 5:20PM. All went well and there were no real issues/complications during the transfusion. Taylor’s nurse stayed by her side the entire 2 hours checking vitals every 15 minutes to ensure everything was running smoothly.

Now Taylor’s old cells will continue to die off over the next couple of days; her old bone marrow “factory” has been shut down by the chemo she received. Today the new “work crew” has entered her body and are heading to a location within Taylor’s body to set up shop. In the days and weeks ahead these new cells will set up a new factory and the hope is that the new cells will begin to build Taylor’s new productive, healthy, and cured blood system!!

Now that the actual transplant transfusion is over, the next few weeks are some of the most dangerous weeks Taylor has encountered. There is high risk of infection, pneumonia and organ damage; these are a result of the chemotherapy she received with this transplant round. Taylor will be closely monitored in the coming weeks; even tonight her blood pressure is slightly elevated due in part to the cyclosporine (to help with Graft versus Host Disease(more on that later)) and possibly due to other elements related to the infusion of stem cells.

BE POSITIVE!! We learn something new everyday…the anonymous donor’s blood type is B+. Taylor’s blood is currently O+. As Taylor’s body accepts the new marrow and rebuilds itself it will transition to the new B+ blood type. So in about 6 to 7 weeks Taylor will be a B+ girl. The body and the transplant process truly is an amazing thing.

Please pray that Taylor stays strong and healthy through her stay in the hospital, pray that Taylor’s body begins to accept the marrow as her own and grows stronger and healthier than ever, pray that the donor recovers with little pain and discomfort, and pray that the medical staff and doctors act wisely in all decisions related to Taylor’s care keeping her safe through this risky time ahead.

-Michael & Aimee

(Again, the above was from one year ago today)

August 2011
Chelsy Baker is an incredible artist and musician from Canada who has been a big supporter of Taylor. I first noticed her artwork because she frequently commented on the YouTube videos that I filmed for Abby Miller. This summer Chelsy held her own fundraiser for Taylor and raised money by singing and playing her guitar. The other day Chelsy was disappointed to find out that she did not get on Canada's Got Talent. All I can say to you Chelsy is that you should not be discouraged. Please continue to express yourself as an artist and don't worry too much about made-for-tv competitions. You are our Grand Prize Winner of Canada’s Got Heart and that's what really counts! Thank you! -Mike G

November 12th, 2011
“Attitude is a little thing that makes a big difference.” ~Winston Churchill. Taylor has faced a lifetime of struggles over the last 5 years, but continues to have a good attitude. If you find inspiration in Taylor's positive attitude please “like” this post. -Emily Deivert

April 28th, 2012
If you look up to or respect a child, please LIKE this photo. On the eve of her 7th birthday, Taylor is one of the most inspiring humans I have ever met. The funny thing is that she has no idea. She is just living her life as if her childhood was uneventful and ordinary. Thankfully the dozens of painful cancer surgeries and procedures are hazy memories that are not part of her daily thought process. She knows that she is still in "the fight" against cancer but this has become a part of her normal routine. Thanks for supporting Taylor and for following this page. We are only a few away from 15,000! -Mike G. — with Taylor Love.

June 27th, 2012
Moving in the right direction

I am receiving many messages and text requesting an update on Taylor for today. Sorry I have not gotten to it until now. Taylor is still inpatient. Her discharge papers were completed this morning but it seems that her blood pressure is running higher than we would like. Her BP meds have been adjusted and we are hoping to see that the oral BP meds can manage the work that needs to be done to help Taylor maintain a safe blood pressure.

On a good note, her creatine (kidney function) has improved slightly. As her kidneys improve Taylor will begin to process the proteins she needs to be processing in order to get back on track.

Not only does the fluid retention increase BP, but the steroids and new immune suppressant can also cause elevated BP. If it is safer to keep Taylor inpatient again tonight we will do so without hesitation. In 2011, Taylor’s first encounter with nephrotic syndrome caused a rapid BP increase and as result Taylor was moved to the ICU where she later went unresponsive. The doctors are taking all precautions to avoid such a repeat.

I am actually home this afternoon; Nana Sue (my mom) is with Taylor. I am pretty much in a holding pattern waiting to see if Taylor will be released and they will come home or if I will return to the hospital later this afternoon for another night with Taylor.

Will post more later.
Aimee
 — with Taylor Love.

May 15th, 2015
Quote of the Day: "Love many things, for therein lies the true strength, and whosoever loves much performs much, and can accomplish much, and what is done in love is done well."
~Vincent Van Gogh

January 21st, 2016
One of the few positive things about cancer is that it teaches you that every day is a gift. Taylor and her family do not take life for granted.

April 5th, 2016
Quote of the Day: "Only those who look with the eyes of children can lose themselves in the object of their wonder." ~Eberhard Arnold

Photo of Taylor from 10/2009. Taylor is now 11 years old and cancer-free.

October 23rd, 2016
Today was the annual Kids Helping Kids Lemonade Stand hosted by The Brad Kaminsky Foundation. Taylor was a volunteer for the first two hours at then took a break for this photo. Special thanks to Lisa Millar from TBKF and the many kids who came out today to help raise funds and awareness for childhood cancer! -Mike G.

Sept 23rd, 2013
Just a few weeks ago cancer survivor Taylor Love was admitted to the hospital with kidney failure. She had an amazing recovery and today played in an All Star soccer tournament for the best young players in the region. Taylor was named captain and her team won this afternoon 3-2 in a very close match.

Way to go Taylor! You have defied very steep odds and you are an inspiration to many children currently fighting cancer! -Mike G.

June 20th, 2015
HAPPY 11th BIRTHDAY TAYLOR!!

Update by Aimee...

It is ridiculous how long it has been since our last update. But we have been so busy living life I’ve been too busy to sit down and take the time to write. Today we celebrate Taylor’s 11th birthday and what a blessing it is to be doing so…

Taylor has had a wonderful year. I honestly cannot think of any medical problems she has had since kidney failure last May. Her only visit to the school nurse’s office this year were for a tooth ache!

This summer Taylor will visit many of her doctors for follow up appointments; I think she has 7 appointments in all; 3 of which we attacked last week. On Friday we visited with Taylor’s oncologist who reviewed her recent abdominal MRI and kidney ultrasound. Oncology late term effect appointments are true reality checks for us as we are reminded of the extensive damage to the inside of her body from the cancer treatments. Bottom line and no surprises; Taylor’s kidneys’ are damaged and are not normal, but thankfully they are functioning to full capacity. Her jaw and tooth problems still need to be addressed, probably in the next couple of years, but Taylor’s need to be on immune suppressants is problematic for the jaw surgery required. Taylor’s liver continues to show signs of toxic chemotherapy exposure; she will continue to have liver MRI’s every 6 months to monitor the benign lesions that have occurred and will continue to occur in her liver. Taylor is being closely monitored by endocrinology as she hits puberty and will begin wearing an estrogen patch. Taylor’s ovaries were damaged years ago by chemotherapy; she is not able to produce estrogen on her own. This is definitely a lot of yuck that a little girl is forced to face. She is use to it though, she has been fighting the fight her whole life and the alternative is, by far, a lot worse.

Taylor continues to thrive day in and day out. She is growing taller, continuing to get stronger and challenges herself by involving herself in school, new sport activities and all-star soccer. When she was initially diagnosed at the young age of 18 months old, Taylor was given a very low chance of survival. We did not know if Taylor would make it to attend preschool, let alone graduate pre-school. She has experienced a world of wondrous firsts these past 11 years. And even now, as she hits new milestones, we quietly celebrate such moments with great appreciation of our miraculous gift.

Mike and I shared a wonderful day with Taylor a few weeks back as she went through her promotion ceremony for her movement from Elementary School to Middle School. She received accolades and was asked to stand up along with some of her other 5th grade classmates for achieving all A/B grades throughout Elementary School. The highlight of the ceremony for us was when Taylor was awarded The National Honor Society of The Daughters of the American Revolution (DAR) Citizenship Award for Honor, Patriotism, and Courage. Taylor was asked to come up on stage and received a certificate & medal which was presented by a local Virginia DAR representative. It was a very proud moment for Mike and me, I did my best to hold back my tears, but a few flowed. At some point Taylor will better understand why this award is so fitting for her. The trust, determination and courage she has exhibited and continues to exhibit is well beyond her years.

Prior to the school year ending, Taylor along with 2 other young survivors and a 5th grade presenter, spoke in front of a group of 5th & 6th grade students about childhood cancer. The girls shared their experiences and stories and helped to educate the young audience about how they can make a difference in the lives of other children with childhood cancer. Taylor has inspired many and continues to bring hope to families today. I look forward to Taylor finding her voice and learning to advocate for childhood cancer in the years to come. She has an amazing story to share.

Another proud moment this spring was when Kyle (just finished 6th grade) took it upon himself as part of a school project to write an essay and speak on behalf of The Truth 365 to his class. He shared facts about childhood cancer and shared some memories he had of Taylor being away from home when she was sick. Kyle and Taylor have always been very close with a unique bond that forged as we navigated Taylor’s journey. I am thankful he is also finding a voice to speak about this crazy world.

I must also include Adam in these proud parental paragraphs. Adam, who is moving on to High School next year, has been accepted into Loudoun County’s Academy of Engineering and Technology (AET). He will be a member of the first class of students accepted to embark on this Science, Technology, Engineering, and Mathematics (STEM) High School program path. We are very proud of Adam, Kyle and Taylor and all their continued accomplishments and milestones. They have all traveled this most difficult treatment path together as youngsters and continue to make us proud as we continue to enjoy our gift of getting to watch and help them grow in their own distinct ways.

I am so glad to be sharing only good news with you these days.

Mike & I wish you all safe, happy and healthy summer.
With hope,
Aimee & Michael

June 28th, 2016
2016
Taking a Stand....When we first met Skyler Smith, Katie Vaughan and Taylor Love several years ago they were too young to truly understand what it meant to be an advocate. Now that they are older (ages 9, 11 and 11) they are very willing to take a stand against childhood cancer. They feel lucky to have survived cancer and they want to help other children who are newly diagnosed and those who will be diagnosed in the future. We look forward to working very closely with these amazing young ladies and their families for years to come! 

We had a photo shoot this afternoon with Skyler, Katie, Taylor as well as with siblings Lexie, Kylie and advocates Alyssa and Audrey. We will post more of the photos in the coming days. Special thanks to Taylor Klein for helping with the shoot! Taylor is home for summer break and is always such a great help!

Please leave a message of support for these great advocates!
 — with Erin KoffmanLisa Farrow VaughanAimee Mask Love and Taylor Klein.
Please LIKE and SHARE if you believe 12-year-old cancer fighter Maesen is BEAUTIFUL. During our trip to Florida last week we had the honor of meeting Maesen at Cocoa Beach. She is an amazing person who has been through a lot in the past several years. She was diagnosed at age 5 with neuroblastoma and has relapsed twice. We know that Maesen is somewhat self-conscious that she is significantly smaller than her younger sister Bella. She also is not entirely sure how to respond when people compliment her on her beautiful freckles. You see, her freckles were not inherited from her parents or grandparents. These spots are side effects from the toxic chemotherapy treatments.

We believe that Masen is perfect in every way,. Yes, she has a life-threatening disease but she is not her cancer. 

Please leave a message of support for Maesen by commenting on this post. We will ask her mom to show her your comments.
 — with Rachael Navarro.
Quote of the Day: "Write it on your heart that every day is the best day in the year." -Ralph Waldo Emerson

Happy New Year from Taylor (right) and her friend Shae!
 

January 1st, 2017